The whole point in being here is to capture a clinical seizure, such that a particular testing could be done, showing us where the darn seizures are originating from in the brain. Well, no seizures, and we are now on Day 3. There are some electrographic seizures detected on the EEG, but no actual convulsions or apparent seizing going on at all. IT’S REALLY REALLY WEIRD!!! But at the same time, it’s the very thing that we all want…. for Harmony to be SEIZURE FREE. Her neurologist, Dr. Williams, said that this sort of thing happens alot to the children once they are here. They seize at home but once here at the hospital, and hooked up to these EEGs, they don’t. The thing I find amazing, is that she has not been taking NEAR the amount of medications as she usually does – and one interesting fact about these anti-convulsant medications is a typical side effect is actually, more seizures. What? I know. I can’t exactly explain it. I’ll have to ask the doctors again.
From 11am till 1pm today, the EEG tech and the nuclear med tech stood by waiting to inject her once we saw a clinical seizure. No such luck. This test called the SPECT is 2 fold. Since we did need an image of her brain activity while no seizure is happening, they went ahead and injected the radioactive chemical into her and took her down for the test. She was given anesthesia for this as well. The 2nd part is an image of her brain while she is having a seizure, which like I said, we don’t have yet. So while she was down there for that, they also performed the PET scan. Total time for all this was only and hour and a half – which gave me enough time to run home and shower!
She came out of the anesthesia fairly well, but was really hungry. They gave her about 6oz of apple juice in the recovery room, and never told me anything about giving her food. So when we got back to the room, I gave her 5 oz of baby food and a little bit more juice. We got comfy and settled and she was already falling asleep when all of a sudden she started making noises with her mouth – yes, you guessed it – she vomited all over me, and the bed. Now I knew that anesthesia could make you nausea but because no one reminded me, I completely spaced it. I felt so bad for her, cleaned her up, put her thru a little more torture because they have to unwrap her head to check on a few faulty electrodes, then re-wrap. By this time, she was completely EXHAUSTED. Enough is enough, I could almost hear her say. My heart aches right now as I watch her sleep. She is moaning gently as if she’s communicating all that is there for her to say.
Thank you, Mom, for being here today and bringing Pumpkin her new GUND bunny.
BV 'before vomit'
And no, we did not get a picture of AV ‘after vomit’…. Nana was gone by then.
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